Rare Diseases: All information online at ZIPSE -- MEDICA Trade Fair

Rare Diseases: All information online at ZIPSE

Interview with Martin Frank, Project Manager for ZIPSE – Central Information Portal for Rare Diseases (German: Zentrales Informationsportal über Seltene Krankheiten)

They are rare, often under-researched and it is difficult to learn about them – rare diseases. Patients, family members and even physicians frequently have a hard time finding qualitative information on diagnosis and treatment options or specialized care providers. Thanks to the Central Information Portal for Rare Diseases, ZIPSE, this should soon change.

04/08/2015

Photo: Yound man with short brown hair and suit - Martin Frank

Martin Frank; ©CHERH

Photo: One red between many green apples

About some diseases we have so far only few research results and information, precisely because they are so rare; ©panthermedia.net/ Sahilu11

Photo: Older man with a laptop

All information about rare diseases will be collected at ZIPSE and can be found there; ©panthermedia.net/ Markus Hofmann

Foto: Michalina Chrzanowska; Copyright: B. Frommann

© B. Frommann